The Boy Whose Skin Fell Off
Overview
A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full.
About The Boy Whose Skin Fell Off (2004)
Released in 2004, The Boy Whose Skin Fell Off is a documentary and tv movie film from Channel 4 Television (United Kingdom). It was directed by Patrick Collerton. The cast is led by Jonny Kennedy. With a runtime of 50m, the film averages 7.4/10 across 9 TMDB ratings.
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